
This morning was day three of an
aid that wouldn’t turn on until I changed the battery and “turned it on and
off, on and off” a bajillion times. Then it would quietly sputter to life and
after a few more rounds of “turning it on and off” would be back to full
volume. Just in time for me to be late to work. In these frantic mornings my
mind turned from panicked prayers to frantic fear. In my groggy and frustrated
state I went from the immediate, “I’m going to have to call in sick if I can’t get
this aid to work” to the future fears “I won’t be able to go to grad school, because
I’ll have to drain my savings to pay for my hearing aids…” (since insurance,
even disability insurance, doesn’t cover it) to scenarios of me locked in a
basement typing my life away and being useless to society since I couldn’t sustain
a job, get insurance, or hear—ridiculous. Fear is a vicious animal that plays
hulk in my heart and suffocates my soul. It is the thing that disables me. Yes,
my hearing loss is severe. I do rely on machines daily. Yes, I miss many things
and have to say “what” more than the lazy teenager. But the thing that really
stops me in my tracks, derails my days, and cripples me is the fear. Fears that
are often rooted in real things-I do need my aids to function, soon I will have
to shell out the $7,000 grand for new aids, but they take on a life of their
own and rob me of today’s hope, joy, and provision.
Fear tries
to make me forget I have a choice. It momentarily convinces me that the things I
am terrified of are “just around the corner” and that there’s “nothing, I can
do”. It tugs at my prideful heart and tells me that I only have value when I am
independently functioning well and isolates me by coddling my stubborn independence
saying “YOU have to figure this out, ALONE”. Fear tries to intimidate me into
an isolated existence that believes people around me simply see me as a burden.
Later today, I read a blog post where the author
articulated “I think most of our "I
bet they think they're better than me" assumptions have nothing to do with them and everything to do with us. And no one can make us feel
crappy about the way we parent, what we eat, how we tend to our marriage, where
we shop, how we spend our money or what kind of person we are--no one but
ourselves” (Kelle Hampton).
Personally, this translated to how I feel about my
loss and how others perceive it—that I’m less than them because of it –like a “not
yet a girl, not yet a woman” sort of separation—“not quite disabled, not quite
able”. That somehow I “miss the mark” on worthiness because of what I lack—hulk
smashing my sense of worth, value, contributing-ableness to the world around me.
But what really stuck me today—was the underlying
fear that I look on the former “pre-hearing-loss-me”
as “better” or “more worthy” the personal reality that I feel less worthy. No
one has told me that—sure, there was the customer service lady that hung up on me,
the people who yell about 2 feet from my face—awkward and embarrassing attempts
to “help” or my favorite—speaking in slo-mo as if that will help me understand
them—but in our politically correct culture—no one would TELL me I’m less. No
one, but me. Granted, the fact that there is no insurance help unless you’re
profoundly deaf makes me feel like society doesn’t care, sees my need as not
worthy of attention, but it’s my choice to internalize it.
Early morning tunnel vision tells me that my loss
is all there is. That I’m just as broken as my dern aid, sputtering through
life and not quite functioning where I should be, and that I might as well throw
in the towel. Tunnel vision steals my strengths, my abilities, my value and
worth.
But, if I keep going, there’s a light at the end of
that tunnel. There’s the light of perspective, of people who DO care, of the
hope of help when I humbly ask for it—the reminder that no one is independent—we
all “get by with a little help from our friends”.
As this day closes I am grateful for grace. I am
out of today’s tunnel. I realized that I had been one-sided in my perspective
of what “stewarding my hearing-loss well” looked like (to throw out
some-christianese). I thought it meant I had to have joy all the time, had to “grin
and bear ii” and just “make lemonade” out of this disability I hate, and
certainly didn’t ask for. But tonight I grasped the truth that the other,
equal, aspect of stewarding is being real. It’s admitting that suffering sucks—and
in that honesty there is freedom. The sharing of my woundedness is my window to
the world. It isn’t something I have to hide or sweep under the rug. I don’t have
to always be happy and show that I have hope—I have to be honest. I have to be
honest when it hurts, when I need help, when I am grieving and angry. Suffering
connects me to people and to my Savior—who is even more upset about loss,
tornados, starving children—than I am. Thank goodness there’s a light at the
end of the tunnel.